Friday, March 6, 2009

ugh.

well, we thought it was croup anyway...so, here's the long story....

about 3 weeks ago avery developed a wheeze that sounded kind of scary, so of course i thought it might be rsv and took into the doc quick. but he said everything checked out so we took her back home. another week goes by and she still has the wheeze, so i take her in again. we saw another doc who said it definitely wasn't in her lungs, but in her upper airway...so he prescribed some acid reflux medicine in case it was reflux that was just irritating the upper airway. ANOTHER week goes by with no improvement, and this time we had plans to go to canada for jordan's gradmother's funeral. anyway, we thought we should have the doc take one more look before we take her out of the country... so jordan took her in (because i knew i would be too emotionally charged)... and it's a good thing he did because the doctor said her airway was so narrow at that point that had we taken her to canada she would have died! are you serious?! we couldn't have figured out that it was this serious sooner?
so we admitted her into american fork hospital so that she could be monitored and begin receiving treatments for croup. jordan would stay over night with her so i could be home with tilly, and then we would switch in the morning. it was NOT fun, but we at least felt better about being in the hospital in case anything too serious happened.
anyway, our 4th day there, jordan called and told me they would be flying her to primary children's hospital in slc, because they just couldn't figure out why she was not responding to treatments. so they intubated my poor little baby, and flew her off.

we met her up there, while aunt jana watched tilly--thank you jana! so there they told us since she wasn't and "emergency case" they would keep her intubated for a couple of days until a doctor could see her. i had two feelings about this...1.)phew, she's not considered an emergency, that's good... and 2.) could we please see someone right away so that the poor thing doesn't have to be on a ventilator longer than necessary! kind of frustrating. fortunately, my mom flew out to stay with me and tilly in slc because jordan had to be back in provo going to school--since he missed a bunch of school the week before.
so, they finally went in with a scope to see what the problem was....drum roll please....
the poor thing had an enormous cyst near her vocal chords that was basically blocking off her airway...she had this tiny little whole to breathe through! while they were in there with the scope, they removed it, and she already sounds a MILLION times better!
so now we are home, reunited as a family, finally! avery is in on the mend. she is still taking the acid reflux medicine to prevent irritation and scarring, as well as amoxicilyn to prevent infection. her throat still sounds a little scratchy, but she is getting there.
anyway, i just wanted to take this opportunity to testify of the reality of our Heavenly Father. this has been a very trying week for our family, and i can't imagine having to go through something so traumatic without at testimony of the gospel of Jesus Christ. although i was a complete basket-case through it all...i really have been sustained. i am so thankful for family and friends who care enough to fast and pray for our family. we are coming away from this experience feeling incredibly blessed...and we thank you all for your concern!

24 comments:

The Karlinsey Family said...

Oh I am so sorry that sounds like a horrible Ordeal If you need anything please let me know. I so glad she is doing better.

Marisa said...

WOW. Maci, you guys are amazing! Glad to hear they figured it out, finally. And ps, I am loving your new blog title. You are hilarious.

Arah said...

wow! what an ordeal. i'm glad they found out what was wrong. you think professionals would have figured things out sooner.
i can see a lot of you in the girls. they are so cute!

Atkinsons said...

Wow! You guys have gone through a lot. Let me know if you need anything or want us to watch the girls, (once they better) so you can go to the temple or have a date night.

Raquel & Marc said...

oh mace how scary. i am so glad to hear that they finally figured i out. we have been thinking about you and your munchkins and it so great to hear good news.

Team Bowers said...

Great attitude Maci! Keep it up! And these trials you are going through is to help you become the amazing wife and mother Heavenly Father KNOWS you are! And He will guide you the whole way! I am so amazed at how well you and Jordan work together! That's so awesome and your marriage is going to be strengthened so much! I remember talking to you at Crystal's shower and you were a little distrot because you had not gotten pregnant yet, just another testimony that Heavenly Father knows you personally, He was waiting for the best 2 little baby girls to come to you guys at the best time. You are so blessed and so special! I just think the world of you!!

Robbins said...

WOW you guys have been through so much with these two amazing little girls! I am so HAPPY to hear that she is home again and returning back to normal health! Thank goodness you were a persistent!

lindsey said...

Annie: avery is soooo lucky that she got to ride in a helicopter. jordan wears glasses?

Tawni said...

Oh my goodness what an experience! I'm so glad she's ok and back at home with you guys. You guys are amazing!

Naomi said...

Dang you and the girls have been put through the ringer! I am glad she is doing better! Here's to a quick recovery!

Brian and Lori Faulconer said...

I can't imagine how scary that must have been! So glad everything is going better now. Breathing problems are always freaky!!

The Nead's said...

Oh my goodness Maci! I am glad she is doing better. Hang in there! Your amazing:)

Jenna and Chris said...

I was wondering all week what was happening. I'm glad that it all turned out okay in the end. You are an amazing mom. My offer to babysit is still there!

One Girl and Three Crazy Boys! said...

oh i am so glad that avery is finally home with you guys. i have been thinking about you guys, just praying everything would be fine with little avery. we are coming to town at the end of the month and would love to see you guys. I will call you soon to see if you guys will be up to it.

Emily said...

Wow, we had no idea it was so serious. Maci you are amazing. I would have been a complete basket case too. I'm so glad Avery is doing better, what a sweetheart, and what an awful oreal. I am so sorry. We love you guys!

Emily said...

Wow, we had no idea it was so serious. Maci you are amazing. I would have been a complete basket case too. I'm so glad Avery is doing better, what a sweetheart, and what an awful oreal. I am so sorry. We love you guys!

Darla said...

Mace!! You poor thing. Thank you for sharing your testimony. How hard that must have been to see your baby struggle at all and NOT KNOW (especially after all you've been through)! Wow.., you sure are being refined.., wonderful woman that you are. (:
Love to all of you.

Darla said...

p.s. sorry to call you a "poor thing". That sounds pitiful. You're not a poor thing, you're NOT!

Cadle Clan said...

I'm so glad she's doing better!

Tiana said...

I can't imagine going through that. You guys are amazing, and I am so grateful everything is alright with little Avery now. Best wishes!

jowo said...

thanks for reminding us that our prayers get answered and our fasts are not for naught. you and your little family are an inspiration to many.

julie said...

poor baby girl!! i'm glad shes doing better and they found the problem.

Dayna Jamison said...

Whoa Maci, you guys have been through it! It makes me so sad to think all along she wasn't getting much air through her little throat! I bet you were frustrated with the first doctor, he should have known something was up.

TyBrit Boyce said...

Wow Maci, I can't believe what you guys went through! I am so glad that everything is going better with Avery and that they found out the problem before it was too late. Hang in there!